ALS, or Lou Gehrig’s Disease, is an incredibly devastating illness. Familial ALS ( fALS ) multiplies that devastation by the number of family members who are stricken. So far, it has taken my dad, his brother, and my sister Patty. Another sister may have it now, and a cousin in his mid-sixties is in a nursing home with frontotemporal dementia, which is caused by the same gene. Dad has still more children, many grandchildren and great-grandchildren who may be affected, but nobody has been tested. Nobody wants to know.
I’m sorry for what this dreadful disease has done to your family. Thankfully, ALS is not in my genes, I am one of its random victims. Where is your family from, Ohio?
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No, Bill, we’re from upstate New York. I’m sorry you have ALS and I wish you for you strength and peace. I hope you’ll read my book; my dad was such a wonderful man.
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